Developmental Disabilities Awareness Month Spotlight: The Power of Listening by Watching

Every year, when the air begins to warm and June peeks around the corner, a quiet countdown begins in Jackson’s household. Not for fireworks. Not for vacations. For Jackson.
Jackson is 24 now; tall, broad-shouldered, with a presence that fills a room even when he says nothing at all. His birthday is coming soon. June has always meant more than just another year. It means camp.
Jackson lives at home with his mom, Jane, and his dad, Doug. His world is shaped by severe autism, global apraxia, anxiety, and OCD. Words are not the way he tells his stories. There are no detailed recaps, no “Guess what I did today?” When Jackson returns from somewhere, you don’t ask for the narrative. You look for the light in his eyes. And every summer since 2015, that light has had a name: Rising Treetops at Oakhurst.
There are very few places that can truly understand Jackson. Places that don’t just “accommodate” him but see him. Places that can handle the hard days. The overwhelming days. The emergency days. Camp did.
They have seen Jackson during his most trying times. When anxiety grips him like a storm, when routines fracture, when the world becomes too loud, too bright, too much. And they welcomed him back anyway. They welcomed him back during emergencies, when life at home was stretched thin. When Jane and Doug had to face situations that demanded their full attention, they knew there was one place where they didn’t have to split their hearts in two.
At camp, Jackson would be safe.
At camp, someone understood.
That knowledge is its own kind of oxygen. At Rising Treetops, Jackson is different. He is the young man in the pool, floating under the open sky, the water smoothing the static inside him. He is the camper who smiles when he sees familiar faces. He is the one who sleeps in a cabin away from home. Something that once felt impossible. He loves being there. Loves seeing people. Loves interacting with peers. Loves the simple magic of being somewhere built for him. And though he cannot come home and describe it, he tells his parents in the only language that matters- anticipation. When camp is coming, Jackson knows. He counts the days. He checks. He waits. He asks in his own way. And that tells Jane and Doug everything they need to know.
There’s another quiet truth in the house, too. Jackson has a sister. Growing up with a brother who needs constant care changes a childhood. It creates compassion but it also creates weight. The weight of schedules, of unpredictability, of attention divided not by choice but by necessity. When Jackson is at camp during the summer or for respite throughout the year the house exhales. Jane and Doug rest. They take their daughter out for dinner. They listen to her stories without watching the clock. They remember, for a few days, what it feels like to sleep without one ear open. They feel gratitude.
Each time Jackson returns from camp, something small but powerful comes home with him. A flicker of independence. A new willingness to take initiative. To do something without prompting. To move through his world with just a little more confidence. The changes aren’t loud. They’re subtle. But they’re real. And they add up.
The countdown will begin again. He won’t tell you about the cabin nights or the pool days. He won’t describe the laughter or friendships. But if you watch him carefully. If you see the way he stands a little taller when he hears the word “camp” you’ll understand. There are places in this world that change lives quietly. Places that hold families together without applause. Places that make a young man count the days. And every June, Jackson reminds us that sometimes the greatest stories are the ones told without words.
About Rising Treetops at Oakhurst
For more than 120 years, Rising Treetops at Oakhurst has been creating life-changing experiences for children and adults with developmental disabilities and their families. Located on a beautiful 15-acre campus in Monmouth County, New Jersey, Rising Treetops offers year-round respite and enrichment programs designed to foster independence, build confidence, and create joyful, inclusive experiences. As part of Developmental Disabilities Awareness Month, Rising Treetops proudly shares stories like Jackson’s through our Voices of Belonging series — reminding our community that when individuals with developmental disabilities are supported, understood, and included, entire families grow stronger.